Clinic

Hmm, I think I should update a little more often! Although to be honest I haven't had much to update, well much interesting anyway.

Anyhoo, went to clinic on Tuesday and was pretty good, lung function was better than I expected, had only dropped 2% although weirdly I had been feeling really crap last week, bleeding and certain it was IV time then on Monday I woke up feeling OK and still feel like this so I can't complain! I've been started on a new inhaler, Symbicort 2 puffs twice daily which so far I haven't noticed a real difference but like I said I feel well so I prob won't till I feel crap again. I might be going onto Itraconazole because all but one of my sputum samples in the last few months have shown Aspergillus at 'heavy growth' and although I don't suffer with ABPA the one sputum sample it didn't show up in was the one I gave 6weeks ago when my lung function had gone up 13% so they figure it is doing something bad down there. I just have to wait and see what the liver team say for it. Fingers crossed though!

I had a chest xray as well, partly because of the haemoptysis and partly because I haven't had one since Jan 09. Doctor also showed me my xray's from Oct 08 and Jan 09 and the difference was amazing, Oct 08 showed infection all over my lungs (lung function 45%ish) then Jan 09 infection mostly only in my lower right lung (lung function just over 50%) I found it kinda weird the difference in the two with only around 5% difference in LF and pretty cool is the fact I only had a little scarring in the bottom of my right lung! I'm wondering what this new xray will show as my lung function is now (when well) about 15% better than then.

I have changed my insulin and am nowing having 50units of Glargine once a day and Humulin S 2/3times a day depending on how many times I eat. Can't really say how thats going so far as I'm only on my second day but anything has to work better than the old way! Have been stopped on my fortisips now though as my BMI is high enough and they aren't helping my blood sugar control, trying to find something new to take tabs with in the morning that masks the disgusting taste is not going well so far although I have only tried one thing (milky way milkshake, not tasty and the highest in sugar on my things to try, tomorrow trying Crusha, No added sugar)


Generally life is about the same as before although I have had a good long chat with CF Guy and we are back to been good mates which is good, as much as it is cool to chat with other CF people around the UK having someone who knows me, knows my personality, knows my humour, knows my friends, knows my town and also knows CF as well, it's a pretty good and rare friend to have.

Not really got a lot else to say plus I'm running rather late as I want to get over to Cov and get some more boxes from Primark for my meds to go in as I am determined to stop their takeover of my flat! Hopefully will update sooner.