Hola!

Well hello, I have logged in to this about 10times in the last few weeks but end up reading a load of other blogs and then logging out!

I'm writing this from room 14, Birmingham Heartlands Hospital which has been my temp home for the last 12days and I should be back at my perminant home on Friday! YAY!

So I have my port now, didn't really go as well as hoped but nothing too major. Firstly wasn't put in the vein they where orginally going for, secondly the GA really knocked the shit out of me, until the Thursday was mostly sleeping, was on alot of anti-sickness and still throwing up any water I drank and just the thought of food made my stomach go on spin cycle. Had some blood tests, also three bags of IV fluid and a scan to find out why I wasn't going to the loo (which as soon as she pressed the scan thing into my bladder made me need the loo!) Took quite a few more days for bowels though, had a little food on Thursday and starting eating more Friday, now (with anti-sickness) I'm eating about normally and with the help of multi-fibre fortisip all toilet habits are back to normal! Anyway got the blood test results back and my liver tests were not very good, had already stopped oral Flucloxacillin as they thought that might be something to do with sickness as I had problems with sickness while having it on IV's. Had tests redone the other day and the levels have already halved but are still classed as abnormal at the moment, going to have it redone again tomorrow and see if I need a liver scan. Keeping my fingers crossed at the moment that it's all going to go back to normal!

Having my lung function done tomorrow. Was meant to have been done today but because I have had blood in my sputum they want to wait, and not having Dnase or acapella at the moment. Getting fustrated with it now because I've only been on it four days out the last 12! It's not going to help with my compliance with it as it's hard to keep routine! When I look and think that a year ago I had very little compliance and now it's so much better but I do struggle sometimes and stuff like this can knock me back. When I say I had very little compliance I mean pretty much no treatment, only took my anti-rejection and the odd neb when felt tight! Last October things came to a head when I got back from my holiday and went into hospital days later with a huge drop in lung function and weight and since have been needing IV's a lot more since. I seem to have been lucky in that I've realised in time and started to get my act together before too much damage has been done, my FEV1 on admission was back to 2L (64%) and I have gained just over 10kg which has helped my lungs. I'm not sure why having a good weight is really helpful in CF (something to ask the doc!) but it really does help with lung function. I feel I have lost alot of the fitness I was slowly gaining before I came in but will start working on that when I get back home. Like I said I should be home Friday, just depends on lung function and liver tests. Anyway I have decided to postpone the walk as it's meant to be two weeks on Sunday and I just haven't got the time or energy to sort everything out and actually walk for more than a few mins! It's kind of a shame as I wanted it to be at the end of CF Week but I'm looking at probably July now, or maybe even August. We will have to see how my health goes, thats one of the most annoying things with CF, you plan something and look forward to it and then CF decides to mess it all up!

Been reading some blogs (Sally-Anne's, Gemma's and Jo's) and they seem to be talking about 'Twilight' books and someone wonderful bloke but can't remember his name. And I'm kind of wondering what it's all about so methinks I might have a search on t'internet! See what this hype is all about! I have finshed reading 'P.S. I Love You' whilst in here and now started 'If You Could See Me Now' and so far it seems OK but have only read a chapter so far. Have also been watching 'Ugly Betty, Series 1' in here, well to be fair I was so bored I watched the whole series in just under 2days! Think I need to rent series 2 when I get home!

Anyways I'm off to sleep because I will have a physio in my room in a few hours sticking a neb in my face! I much prefer to do physio in the afternoon and evening when I'm fully awake!!!

Oh just remembered the reason I named this post 'Hola!' I have my flights booked to Spain now and we are going to be staying in the city now instead of next door to my dad as Shelly will more than likely be in hospital and my dad going back and forth will leave me and John stuck in the urbanizacion with no car or spend most of holiday stuck in the hospital (not my idea of a holiday! Spend to much time in UK hospitals and just because they are Spanish hospital don't make them more fun!) Anyway just really looking forward to it, don't think my port will be healed enough to go in pool but then it's not till the 26th so might be, see what happens!

Poor, sore and in need of insulin!

Am rather short of money at the moment in general, then I get a big shock when I opened my payslip from work to see £51! Have lost 2days pay for hospital appointments! Now where I work I get a certain amount of paid hospital appointments per year so to not be paid for them this week was not good! I use my DLA to pay my bills (apart from phone, mobile phone and internet!) so I could have been OK with £50 as I'm paid up with my bills, but this week I have to go to the hospital and that costs me £15 it's my Mum's birthday and I have very little food and a very big appitite! My Mum's dead good though and don't get offended so long as thought has gone into a prezzie!

Went to the gym yesterday, walked there and was just about to go in when I realised I hadn't got a padlock for my locker so walked all round the 2 retail parks and Tesco's (which doesn't sell padlocks!) finally got hold of one but by this time I feel like I've already done a workout! Still did the workout, really pushing myself and then walked home and then went to work which was very busy... not my best idea really... felt like poo by the time I left for work, lungs hurt at work and feel asleep on my mum sofa after, changing my sheets before I went to bed I actually gave up and left the duvet cover off! Still I slept very well and last nights and today physio has been very productive! My muscles are quite sore and slightly jelly like today! Been doing lots of stretching and it's lots better! Just need to remember that I'm not superwoman just because I feel better than I did a few months ago, walking quite fast on the treadmill at the highest incline is past what I'm capable of at the moment! Anyway going to go again Saturday and take things a little easier on the treadmill. Least I don't have work after either as well!

Had a look in the fridge earlier and realised the insulin pen I am nearly finished is infact my last not the last in its box but thought I had another box, tried to ring the repeats number to find... it doesn't excist anymore! Grrr! So this means going into my docs tomorrow and sitting around waiting for a doctor to have time to write a script then go everywhere looking for a pharmacy that is open on Good Friday! Double Grrr! Really don't know how I managed to get so low. Going to have a full search of the flat anyay, I might have half a pen somewhere!

Hospitals and Holidays!

Ok so last week I was at the hospital twice, once on the Monday which I put in my last blog and once on the Wednesday. On the Wednesday I went for my appointment about my port and as I had been waiting about 10weeks for an appointment I was a bit shocked to find out it was in just under 3weeks on April 21st! I'm quite excited in a nervous sort of way! Fits in quite well though as I have a clinic appointment next Tuesday to review if the flucloxacillin has worked so they can check then if I need a few days of IV's before hand. I'm sure at the moment, the orals have really worked but I don't think I am 100% yet... still see what happens next week, in a way I would rather have some IV's and not really need them rather than need them and not have them and them cancel my port and have to wait ages to get another date! Popped up to the ward and saw the physio quickly for a chat about the gym and got told that because my lung function is now over 55% and o2 levels stay stable I don't have to make any allowences for my CF when doing my workout, just go in as been very unfit! Went on Saturday and have got a good rountine started up. Going again tomorrow, was going to go this morning but I had a bad night sleep last night so didn't wake up till really late!

Have found some dates that I should be able to have of work, John has already booked them off and found some flights that we can afford so fingers crossed I should be going to Spain on the 26th May and hoping that Marcus will have entered the world by then! Just need to speak to my team and check that 5 weeks will be long enough to fly after having my port put in. I really hope I can go as I've been looking forward to seeing Marcus since I found out that Shelly was pregnant and really looking since it was a boy and now I've felt him kicking a few weeks ago and I'm just so excited to be a big sister, I'm mean yeah I'm a big sister to Ben and Sofia but Ben is only 4 and 1/2 years younger than me and a foot taller and Sofia wasn't my sister when she was born so I never knew her as a baby, she hadn't long turned 1 when they got together, to me she will always be my sister not my stepsister but I do miss the fact I never saw her as a baby. Can't believe she will be 2 in a few weeks! Everything is going on... between now and end of May I have Mum's birthday, my mate Heather's birthday, my port, Sofia's birthday, my mates the twins Birthday Dad's (my stepdad) birthday, my mate Lyns birthday, Shelly due to have Marcus, John's birthday and hopefully going to Spain!

Anyways I'm getting pretty sleepy so I'm off to bed! x x x