Sunday 25 October 2009
Friday 23 October 2009
Wednesday 21 October 2009
All in a spin!
Morning!
So I finally have a washing machine, I've just finished my second load of washing and about to stick in a 3rd! Been the sad act I am I have taken pics of the old one after I pulled it out, but before I disconnected it...
and the new one, doing the first load...
I think I may be a little over excited about my washing machine. LOL!
Anyway in non-washing machine news my sickness seemed to have gone yesterday and so far today although I did bend over just after eating yesterday and sick came into my mouth! Ewww!
Ooh I will finish my update later cus I just got an offer to go for lunch and as I have no nice food in my fridge/cupboards I'm off! :-D
Tuesday 20 October 2009
Belly's gonna get ya!
OK so going to get the poo bit out the way first... my mate did have worms, mate and partner have both been treated for worms, I have been checking my poo still and no worms for me (although on a completely disgusting side note I realised I swallow way more sputum than I thought!)
So anyway from the subject of poo, my belly is still playing up in terms of feeling constantly sickly... I am still eating but lots less and not enjoying any of it... it's really annoying me as I normally enjoy food so much, it's a very big part of my life and right now it feels like such a chore, I was at my GP's today sorting a few things out and was trying to get some anti sickness but they won't prescribe me any without a drug name from Heartlands, fair enough I suppose, my GP is generally very good for prescribing stuff if I ask but with such a long list of repeats they don't want to give me anything that hasn't been OKed by the hospital in case of possible drug interactions. Still I only have a few days left till clinic so I will ask them then.
Other bit of exciting news (well exciting to me anyway) is that I am getting a washing machine Wednesday, suppose that's technically tomorrow, after my old one been broken for about 3months. This will mean no more weekly trips to my mums with a suitcase full of washing, YAY!!! I just have to work out how to unwire (it's in my bathroom so can't just be plugged in, has to be wired into a power breaker) take all the plumbing off and drain the water out! This is if I can actually move the bloody thing!
So anyway from the subject of poo, my belly is still playing up in terms of feeling constantly sickly... I am still eating but lots less and not enjoying any of it... it's really annoying me as I normally enjoy food so much, it's a very big part of my life and right now it feels like such a chore, I was at my GP's today sorting a few things out and was trying to get some anti sickness but they won't prescribe me any without a drug name from Heartlands, fair enough I suppose, my GP is generally very good for prescribing stuff if I ask but with such a long list of repeats they don't want to give me anything that hasn't been OKed by the hospital in case of possible drug interactions. Still I only have a few days left till clinic so I will ask them then.
Other bit of exciting news (well exciting to me anyway) is that I am getting a washing machine Wednesday, suppose that's technically tomorrow, after my old one been broken for about 3months. This will mean no more weekly trips to my mums with a suitcase full of washing, YAY!!! I just have to work out how to unwire (it's in my bathroom so can't just be plugged in, has to be wired into a power breaker) take all the plumbing off and drain the water out! This is if I can actually move the bloody thing!
Tuesday 13 October 2009
What a load of poo!
Good evening all!
I'm starting to get rather good at updating this more than once a month! So the rest of my IV's went fine, on the last dose the Tobramycin syringe got blocked again, was pretty much the same point as before (30mls left) so was no panic that time! Still on Trimethropin for a few days but my lungs feel quite good atm, got clinic on the 26th so will see how things are then.
Past few day my belly has been playing up, was throwing up last night and have felt quite sick today with naughty bowels! I'm making sure I have plenty of fluids at the moment and having those probiotic drinks, hoping I feel right as rain in a few days, although I am a little worried as one of my friends has described something rather dodgy going on in their poo, like little white bits that move! Now I'm sure I'm not the only one who thinks anything that moves should not be in your poo! So as I saw this friend only a few days (just before I started throwing up) ago and they where complaining of stomach pains when I saw them (I'm been very careful not to give away gender here, I don't know if any of my mates read this and wouldn't want to embaress this person as they told me in confidence) so I'm now a little paranoid and keep checking my poo but thankfully although it's disgustingly loose there is definatly nothing moving in it!
Anyway now I have left you all with wonderful mental images of mine and my friends poo I'm going to bed!
I'm starting to get rather good at updating this more than once a month! So the rest of my IV's went fine, on the last dose the Tobramycin syringe got blocked again, was pretty much the same point as before (30mls left) so was no panic that time! Still on Trimethropin for a few days but my lungs feel quite good atm, got clinic on the 26th so will see how things are then.
Past few day my belly has been playing up, was throwing up last night and have felt quite sick today with naughty bowels! I'm making sure I have plenty of fluids at the moment and having those probiotic drinks, hoping I feel right as rain in a few days, although I am a little worried as one of my friends has described something rather dodgy going on in their poo, like little white bits that move! Now I'm sure I'm not the only one who thinks anything that moves should not be in your poo! So as I saw this friend only a few days (just before I started throwing up) ago and they where complaining of stomach pains when I saw them (I'm been very careful not to give away gender here, I don't know if any of my mates read this and wouldn't want to embaress this person as they told me in confidence) so I'm now a little paranoid and keep checking my poo but thankfully although it's disgustingly loose there is definatly nothing moving in it!
Anyway now I have left you all with wonderful mental images of mine and my friends poo I'm going to bed!
Tuesday 6 October 2009
Home Sweet Home
So I did go home on Friday was discharged at about 5pm and my dad didn't get there to pick me up until approx. 7.30pm so I spend 2 and a half hours in the day room but I didn't care because I was going home! Went to Big John's for a pizza on the way home, I swear if it was closer to the hospital they would have the fatest CF patients, a 9" pizza costs just £2.99 and it's so lush! Anyway talking of fat CF patients my last weigh in at the hosp was 62kg on the dot. This is an increase of about 3.5kg since the start of my IVs and a crazy 15kg since the beginning of the year!
I had a bit of a nightmare with my afternoon IVs today. Everything was going well until nearly half way through my Tobi and then it all just stopped saying it was blocked, checked the line nothing, wiggled my shoulder a bit and tried again, still nothing rang the hospital they said to try flushing it and put some Heparin through which went through but once I hooked it back up to the Tobi pump it was still nothing so tried again and again the flush and Heparin went through fine. Take it in mind this is only my second lot of IVs through my port, first set of home IVs in about 3 or 4 years and my 3rd of home IVs through my port so I was getting a bit worried, you here hear nightmares about ports that only last a few months! Rang Heartlands again and they suggested as the flush was going through then to try taking the Tobi syringe out the pump and pushing through a few mls before trying again and for some reason the syringe wouldn't push (until I pushed really hard and managed to lose about 4mls in the process) and then once I hooked it up it was fine but I have used up my spares of Heparin so I hope I have no more problems!
Spent a mad weekend helping my cousin organize a charity indulgence evening for Monsoon and their charity The Monsoon/Accessorize Trust, which included a fashion show. So I did the music for the show, helped to sort out the models timing and helped to sort out there accessories, all in all it was a wicked success, managed to smooth over the small problems pretty well and raised £280! And I managed to get my eyebrows waxed for free. I have used all my energy for the week though so planning a few chilled days as I felt pretty rough Sunday after I got home!
Anyway off to bed now, Night Night!
I had a bit of a nightmare with my afternoon IVs today. Everything was going well until nearly half way through my Tobi and then it all just stopped saying it was blocked, checked the line nothing, wiggled my shoulder a bit and tried again, still nothing rang the hospital they said to try flushing it and put some Heparin through which went through but once I hooked it back up to the Tobi pump it was still nothing so tried again and again the flush and Heparin went through fine. Take it in mind this is only my second lot of IVs through my port, first set of home IVs in about 3 or 4 years and my 3rd of home IVs through my port so I was getting a bit worried, you here hear nightmares about ports that only last a few months! Rang Heartlands again and they suggested as the flush was going through then to try taking the Tobi syringe out the pump and pushing through a few mls before trying again and for some reason the syringe wouldn't push (until I pushed really hard and managed to lose about 4mls in the process) and then once I hooked it up it was fine but I have used up my spares of Heparin so I hope I have no more problems!
Spent a mad weekend helping my cousin organize a charity indulgence evening for Monsoon and their charity The Monsoon/Accessorize Trust, which included a fashion show. So I did the music for the show, helped to sort out the models timing and helped to sort out there accessories, all in all it was a wicked success, managed to smooth over the small problems pretty well and raised £280! And I managed to get my eyebrows waxed for free. I have used all my energy for the week though so planning a few chilled days as I felt pretty rough Sunday after I got home!
Anyway off to bed now, Night Night!
Thursday 1 October 2009
Wii fit and firefighters!
So I'm kinda shocking at updating this. Oh well!
So my current home is room 11, ward 26 at Heartlands hospital although I should be going home tomorrow... please cross your fingers for me! I've only been here a week but I really want to go home, for once it's less to do with been bored here but having so much stuff I'm missing out on at home! (but I am pretty bored as well) Anyway it was written in my notes today that I'm fine to do home IVs so should be all good to go tomorrow. I'm adding in Trimethropin (sp) tomorrow to deal with my Staph as that was all that was showing in my last sample!
Have been in the gym with the physio today and went on the Wii fit, so much fun, I think I will have to stick it on my Xmas list (yeah I'm thinking about Xmas, even got a few small presents!) Did a few different things but I think the hula worked my lungs best in a shorter time, two min's is long enough for that, I also did an 11 min jog but had to keep stopping to get my breath back. Anyway I can't wait to get it as I wanna try the yoga and more stuff!
Ha ha, I slept through a fire alarm today, apparently it went on for ages and firemen were on the ward and everything! Not 100% sure what it was for, something to do with a funny smell coming through the vents, don't know if they meant burning, gas or something else but they set the alarm off to get it checked out. Wasn't anything to worry about in the end but it did worry me a little that I didn't hear it, I have been awake for the drill before and it is very loud, louder than my smoke alarm at home! If I can sleep through that then would I wake up if I had a fire at home? Would prob be a crisp!
Shelly has posted some pics of kids on facebook and Marcus is sitting up in one of them, on his own! And eating baby rice... my baby brother is growing up (even though he is only 4 months! LOL) I really missing them but can't go over right now as I haven't got a passport or any money! Shelly really wants to come over at Xmas to take advantage of the January sales so will get to see them then!
Anyway Neb's and physio aren't going do themselves so I'm off, will fill you in on my life again... erm... at some point in the future! LOL
So my current home is room 11, ward 26 at Heartlands hospital although I should be going home tomorrow... please cross your fingers for me! I've only been here a week but I really want to go home, for once it's less to do with been bored here but having so much stuff I'm missing out on at home! (but I am pretty bored as well) Anyway it was written in my notes today that I'm fine to do home IVs so should be all good to go tomorrow. I'm adding in Trimethropin (sp) tomorrow to deal with my Staph as that was all that was showing in my last sample!
Have been in the gym with the physio today and went on the Wii fit, so much fun, I think I will have to stick it on my Xmas list (yeah I'm thinking about Xmas, even got a few small presents!) Did a few different things but I think the hula worked my lungs best in a shorter time, two min's is long enough for that, I also did an 11 min jog but had to keep stopping to get my breath back. Anyway I can't wait to get it as I wanna try the yoga and more stuff!
Ha ha, I slept through a fire alarm today, apparently it went on for ages and firemen were on the ward and everything! Not 100% sure what it was for, something to do with a funny smell coming through the vents, don't know if they meant burning, gas or something else but they set the alarm off to get it checked out. Wasn't anything to worry about in the end but it did worry me a little that I didn't hear it, I have been awake for the drill before and it is very loud, louder than my smoke alarm at home! If I can sleep through that then would I wake up if I had a fire at home? Would prob be a crisp!
Shelly has posted some pics of kids on facebook and Marcus is sitting up in one of them, on his own! And eating baby rice... my baby brother is growing up (even though he is only 4 months! LOL) I really missing them but can't go over right now as I haven't got a passport or any money! Shelly really wants to come over at Xmas to take advantage of the January sales so will get to see them then!
Anyway Neb's and physio aren't going do themselves so I'm off, will fill you in on my life again... erm... at some point in the future! LOL
Subscribe to:
Posts (Atom)
